Adult Priorities:
An involved process looked at what was important to research from a patient’s perspective. The group reviewing and compiling the results included patients, clinicians, researchers and decision makers. Fourteen research questions were identified fitting into four different themes; Improving knowledge and competencies in chronic pain
- Improving patient-centered chronic pain care
- Preventing chronic pain and reducing associated symptoms
- Improving access to and coordination of patient-centered chronic pain care
For more details see the article here
Pediatric Priorities:
An involved process identified the top ten research priorities in pediatric chronic pain in Canada. Information was obtained from children and adolescents who live with chronic pain, their family members and clinicians. The top ten priorities involved the following areas;
- Prevention of chronic pain
- Impact and treatment of chronic pain
- Delivery of care
- Access and coordination of care
For more details see the article here
The James Lind Alliance (JLA):
The James Lind Alliance (JLA) is a non-profit making initiative which brings patients, caregivers and clinicians together in Priority Setting Partnerships (PSPs) to first identify and then prioritize unanswered questions about an illness and / or the effects of treatments that this group of people agrees are the most important. This information helps ensure that those who are funding health research are aware of what matters to patients, their caregivers and clinicians since they are the end users of any funded research.
In 2014, the Canadian Institute of Health Research (CIHR)’s Institute of Musculoskeletal Health (IMHA) and the James Lind Alliance (JLA) set up of PSP to identify the unanswered questions about the management of adult fibromyalgia from patient / caregiver and clinician’s perspective and then prioritize into the top ten that patient/ caregivers and clinicians agreed were the most important. This PSP was completed in 2016. To see the top 10 Priorities go to https://www.jla.nihr.ac.uk/priority-setting-partnerships/fibromyalgia-canada/top-10-priorities.htm
The Fibromyalgia Association Canada will review each of the fibromyalgia top 10 Priorities and wondered how many of these have actually been researched.
For more details see here